"What was that?!" I cried as I jumped out of bed. "Wah!" replied Gracie!!!!!!!!!! Omg- we can finally hear her voice! She is cooing and honking and crying and generally expressing her opinion....:) Amazing Gracie has grown so much that she is able to move air around her trach. It's just so cool! We are also able to use the passy-muir valve and will continue to increase Gracie's time wearing it. Eventually she will wear it all day, even when she drinks a bottle. It actually greatly assists in swallowing, but one step at a time!
Our ENT was so happy to see all three of us doing so well. He went through a very dark and scary time with us and he is particularly protective of Gracie. It's very sweet :)
So the doctor was able to tell a lot about Gracie's progress because he could hear her making noises and breathing through her nose as well as her trach. He didn't even have to scope her, which was a huge relief to me as it is so unpleasant. He did his traditional finger-over-the-trach routine which makes my palms sweat, but Gracie did not freak out like she used to. He also tried putting a piece of silk tape over her trach and she did pretty well with that too. We see him again in early January when we will discuss plans to decannulate her! The process may be much more straight forward than I initially expected- much more so than the NG tube. So the general plan is that the trach will some out sometime in March. Ramsey, myself and Gracie were all born in March, so Happy Birthday to us!!!!!!!!!!!!
Our ENT was so happy to see all three of us doing so well. He went through a very dark and scary time with us and he is particularly protective of Gracie. It's very sweet :)
So the doctor was able to tell a lot about Gracie's progress because he could hear her making noises and breathing through her nose as well as her trach. He didn't even have to scope her, which was a huge relief to me as it is so unpleasant. He did his traditional finger-over-the-trach routine which makes my palms sweat, but Gracie did not freak out like she used to. He also tried putting a piece of silk tape over her trach and she did pretty well with that too. We see him again in early January when we will discuss plans to decannulate her! The process may be much more straight forward than I initially expected- much more so than the NG tube. So the general plan is that the trach will some out sometime in March. Ramsey, myself and Gracie were all born in March, so Happy Birthday to us!!!!!!!!!!!!