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Well, I am really writing to tell you all about Gracie's most recent airway scope which was on Oct. 4th, but the REALLY important question is: what should she be for Halloween??
Lady Bug? (there are wings too)
Lady Bug? (there are wings too)
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Or Kitty? Please note the eye patch which adds a pirate effect to each ensemble....choices, choices...;)
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So you can see that this little monkey doesn't let anything hold her back! And just to prove yet again that she is super awesome, Gracie was a rock star for her airway scope which showed great improvement regarding her trachealmalacia. Her upper airway still needs more time, however, so the trach will stay with us for a while longer. Her epiglottis and back of her tongue are still creating enough of an obstruction that if she got sick, the residual swelling could spell big time breathing trouble. My biggest fear is not how long she will have her trach, but rather getting it out too soon and possibly having problems.Or worse yet, having to be re-trached. So the great news is that there are no procedures or surgeries necessary. She just needs time to grow and that is music to our ears! How lucky we are! Phoenix Children's Hospital once again made a potentially stressful morning as easy as they possibly could. Gracie never cried and I......well, I barely did. I think this is pretty good considering I am a hormonal preggo! Ramsey was ever-calm under pressure and had everyone in the waiting area smiling as he played with our sweet girl. So we will visit our ENT in 6 months when we will discuss scheduling another scope. I hate that G has to keep going through this procedure, but it's the only was to know for sure when she can be safely decannulated. And did I mention that Gracie and I were camped out at my mom's house all week while Ramsey moved us form Casa Grande to Chandler? Phew! So we are ready to take our time settling into our new home which is closer to all of our doctors, Ramsey's office, my mom, and everything else! We have already been enjoying life up in the Valley of the Sun SO much and Gracie has transitioned beautifully. Honestly, she makes it all look so easy ;) And now I need a nap....